Comments on: Updated: Schumer treated for possible Lyme disease http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/ Fri, 5 Sep 2008 05:53:30 +0000 http://wordpress.org/?v=wordpress-mu-1.2.5 By: Rene Stutler, RN http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-25054 Rene Stutler, RN Wed, 31 Oct 2007 14:43:03 +0000 http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-25054 Dear Senator, I'm glad you and your doctors were knowledgble about the relationship of a bug bite, rash and symptoms requiring treatment. I and many others have had experiences where we did not put it all together and over time have had many unusual symptoms and MD's thought s/s were "just a virus", 'flu", "stress", "depression", "fibromyalgia". I have finally found an MD who recognized the late symptoms but I will probably not ever get over the joint pains, numbness is my feet, memory problems, severe fatigue. Please be in contact with insurance companys to treat us without hassle. Dear Senator,

I’m glad you and your doctors were knowledgble about the relationship of a bug bite, rash and symptoms requiring treatment. I and many others have had experiences where we did not put it all together and over time have had many unusual symptoms and MD’s thought s/s were “just a virus”, ‘flu”, “stress”, “depression”, “fibromyalgia”. I have finally found an MD who recognized the late symptoms but I will probably not ever get over the joint pains, numbness is my feet, memory problems, severe fatigue. Please be in contact with insurance companys to treat us without hassle.

]]> By: John Chalfin http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-20941 John Chalfin Thu, 14 Jun 2007 22:06:36 +0000 http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-20941 I only hope that you have the "pull" to finally make people stand up and LISTEN. This is an Awful disease. Mine didn't show up for a Year. Now I'm going blind, My brain is being attacked and I'm in PAIN, 24 hours a day. Someone needs to bring this to "the Light of day". Best wishes to you. Have someone tell you about the "CWD" bacteria. I only hope that you have the “pull” to finally make people stand up and LISTEN. This is an Awful disease. Mine didn’t show up for a Year. Now I’m going blind, My brain is being attacked and I’m in PAIN, 24 hours a day. Someone needs to bring this to “the Light of day”.
Best wishes to you. Have someone tell you about the “CWD” bacteria.

]]> By: Steve Dorr http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-20916 Steve Dorr Thu, 14 Jun 2007 15:54:13 +0000 http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-20916 Senator Shumer, I do hope your Lyme Disease is atypical and responds to treatment right away. Your spokesperson is misinformed, as is most of the public and medical establishment. At this point your treatment is not preventative as you already have symptoms of the disease, ie bullseye rash. Also the fact that the bullseye is subsiding doesn't mean the disease has been stopped, it just following a usual sequence for symptoms. Hopefully, your treatment will eradicate the organisms from your body. If not, other symptoms can be latent and may not show for some time. The IDSA protocol is not been proven adequate once the organisms have gone to the nervous system. Longer term therapy may be required if neurological or other symptoms show up later. We sincerely hope they do not. Hopefully your clinician is aware of other protocols, such as ILADS (longer term therapy) which may be needed if the disease becomes established in your central nervous system. Your clinician certainly should be more open minded about your care than the denials and lack of concern most Americans get from the medical establishment . Its time this disease is recognized for the horror it is. There is no room for politics and debate whether this is real or not. For hundreds of thousands of people this is most certainly real and is way past debate. Best wishes. Senator Shumer,
I do hope your Lyme Disease is atypical and responds to treatment right away. Your spokesperson is misinformed, as is most of the public and medical establishment. At this point your treatment is not preventative as you already have symptoms of the disease, ie bullseye rash. Also the fact that the bullseye is subsiding doesn’t mean the disease has been stopped, it just following a usual sequence for symptoms. Hopefully, your treatment will eradicate the organisms from your body. If not, other symptoms can be latent and may not show for some time. The IDSA protocol is not been proven adequate once the organisms have gone to the nervous system. Longer term therapy may be required if neurological or other symptoms show up later. We sincerely hope they do not. Hopefully your clinician is aware of other protocols, such as ILADS (longer term therapy) which may be needed if the disease becomes established in your central nervous system. Your clinician certainly should be more open minded about your care than the denials and lack of concern most Americans get from the medical establishment . Its time this disease is recognized for the horror it is. There is no room for politics and debate whether this is real or not. For hundreds of thousands of people this is most certainly real and is way past debate. Best wishes.

]]> By: Robin http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-20899 Robin Thu, 14 Jun 2007 05:44:39 +0000 http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-20899 Sen. Schumer -- I hope you are able to get better on the antibiotics. I also hope you will do everything you can to help Lyme sufferers in this country. We need access to Lyme-literate MDs, testing and treatment. We need health professionals to know about Lyme and co-infections. Currently, they are generally uneducated about what is happening. We need people to know about this disease and the other co-infections, and that they are all spreading. We need people to know how to protect themselves and their pets. We need HR741 passed. Thank you for your attention. Sen. Schumer—I hope you are able to get better on the antibiotics. I also hope you will do everything you can to help Lyme sufferers in this country. We need access to Lyme-literate MDs, testing and treatment. We need health professionals to know about Lyme and co-infections. Currently, they are generally uneducated about what is happening. We need people to know about this disease and the other co-infections, and that they are all spreading. We need people to know how to protect themselves and their pets. We need HR741 passed. Thank you for your attention.

]]> By: liz http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-20344 liz Tue, 29 May 2007 18:38:18 +0000 http://polhudson.lohudblogs.com/2007/05/24/schumer-undergoing-treatment-for-lyme-disease-2/#comment-20344 Good luck Senator Schumer. Most Americans get real sick with Lyme . Then the Infectious Disease Society of America stops our care. Maybe since you are an elected elite you will be able to access what we the little people cannot ... ie" adequate care for Lyme Disease. Good luck Senator Schumer. Most Americans get real sick with Lyme . Then the Infectious Disease Society of America stops our care. Maybe since you are an elected elite you will be able to access what we the little people cannot … ie” adequate care for Lyme Disease.

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